Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Physical Therapy’

Five For Friday 3/18/11

Written by Katie. Posted in Five For Friday

 

1.  Medical Stuff:
  • 2 Days of PT-Did regular circuit strengthening.  My PT also put new foot lifts in my shoes to give me better support. 
  • 2 Days of Home Rehab.
  • I got into Dr. Grubb’s Nurse Practitioner!  I had sent my info into their office in December and they called me Tuesday to schedule an appointment.  My appointment is in Toledo on April 20th, to get another expert’s opinion on POTS and my treatment.  It takes a year or more to get into Dr. Grubb himself so I jumped at the chance to see the NP since I was told they work very closely together.  I was also told to expect at least 2 hours for my appointment because she will go over EVERYTHING.  At a couple of my EDS appointments in the past year, I was told that Dr. Grubb probably has the best understanding about how POTS plays into EDS so that is promising to me.
  • My ribs hurt!  It’s been pretty frustrating.  I go back Monday to get my third round of prolotherapy (I cannot believe it’s already been 3 weeks!) so I will definitely be bringing up my ribs because they are worrying me!
  • I had to go to Sparrow Medical Supply to get a new pair of compression stockings since one of my stockings ripped in half when I was taking it off.  ?Oops.
RIP my first pair of compression stockings.  You were good to me.

Five for Friday 3/4/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff

  • Prolotherapy round two was on Monday.
  • 1 day of PT
  • 1 day of Home Rehab
  • POTS has been giving me fits since Wednesday.  My heart rate hasn’t been this up and down for a while.  Had a minor meltdown about it after feeling dizzy and feeling a lot of body heaviness and weakness.  My therapists pointed out that the trauma from the shots could have made my autonomic nervous system go haywire.  Also, it could be due to my cycle and/or not doing therapy for a full week (could 7 days cause enough deconditioning to give me worse POTS symptoms?)  Maybe it’s a combo of all 3? I definitely recorded this in my daily log.

EDS Inservice

Written by Katie. Posted in Ehlers-Danlos Awareness

 

Last Tuesday, was the Ehlers Danlos Inservice that the PT student who I have been working closely with put together for all of the other therapists.  She had asked me to come to show the Beighton Scale (one of the ways I was diagnosed), and to help answer questions and provide information from a patient’s perspective.  ?I was so proud of her~She put so much work into the presentation.  It is always surprising to me how little is known about EDS in the medical world.  This is why I was extremely THANKFUL to this student who took the time to educate the therapists, to help “make the invisible, visible,” and hopefully help other patients get to a proper diagnosis in a much more timely fashion than it took me. 
The slides below are from her PowerPoint.  Let me be clear~this is NOT my presentation.  I did not put together these slides.  The PT student did, and she was nice enough to share these and all of her other resources with me. 

"There are no gains without pains." ~Stevenson

Written by Katie. Posted in Prolotherapy

Hopefully, this post will be coherent since I am pretty sleep deprived.  I had my second treatment of prolotherapy yesterday, and let’s just say this time, it really kicked my booty.  I went into it thinking the second round would be easier than the first since I knew what to expect and I have been experiencing some benefits from the first round.  Well, I was wrong, wrong, wrong.  I was NOT expecting that this second round would be way more painful than the first and make me sick (throwing up) from the pain.  It’s been a long 24 hours.

R & R

Written by Katie. Posted in Physical Therapy

So today I got to therapy ready to get on the full body gym, and my PT pulled me into one of the exams room instead.  She said we were going to talk first today.  Uh oh.  She said she was watching me on Monday and was worried that I am overdoing it, and that we need to think more about pacing.  Ughhhhh, “pacing”…I have developed a strong dislike for that word ever since I was diagnosed.  She asked me how I have been doing after therapy and I was honest.  I said some days I feel great and do completely fine and other days I crash hard.  She asked me about how I was after Monday and I admitted that I went to Meijers afterwards (I was supposed to go straight home and rest), and by Tuesday morning I was throwing up and had to sleep during the day.  Busted.