1.  Medical Stuff:

• Had Prolotherapy treatment #1 Monday on my neck and upper back.
• Saw Larry Tuesday in the office-We talked about how I am doing and goals to set.  We decided that it is best to still wait to see Dr. Grubb and hear another opinion on POTS treatment.  
• The cardiologist called and said my blood work looked good.
• Had PT Thursday.  My PT pretty much said I am a “lifer.”  I’m okay with that if it gets me to where I need to be.  I also met another EDS person at therapy this week. 
• Did home rehab Wednesday and Friday.

I’m sitting…ok lying here after PT trying to get my body to move but not having much luck.  I guess that is to be expected with my first PT session after prolo.  I did surprisingly well during therapy but I am definitely feeling it now.

On the Dysautonomia POTS FB page this morning, this status caught my eye:
“It is important that you recognize your progress and take pride in your accomplishments. Share your achievements with others. Brag a little. The recognition and support of those around you is nurturing.”  ~Rosemarie Rossetti


This quote was very timely today. 

It turns out the third time WAS the charm.  I finally had my first round of prolotherapy yesterday.  Going into it I had no clue what to expect except that people kept saying I would be in pain.  They weren’t lying. 


We got to the office and the nurse came and took my vitals.  Dr. Cantieri came in and we talked about what would happen, and he asked if I had questions.  Of course I did.  He answered everything like I will be using the Testosterone cream for probably about 8 weeks to help my body heal, I need to come back in three weeks for round 2, that I should not get discouraged if I do not feel much different after the first treatment….Dr. Cantieri explained that it is usually after the second treatment that I would be able to tell if the prolotherapy was making a difference. 

1.  Medical Stuff:
I had two sessions of PT.  
Bought special gloves to use to help put on my compression stockings.
A lot of exercises were done at home.
I rescheduled and rescheduled again prolotherapy for Monday.
I had blood work to test my potassium since Florinef can deplete potassium.  My potassium was normal but my glucose was low.

Let me just say that I am realizing that Ehlers Danlos and POTS are such weird disorders.  There is so much inconsistency with how they affect me day to day.  Last week was such a better week for me.  I didn’t need my cervical collar as much, it felt like my meds were really doing a good job controlling the POTS, and I was able to rehab with much more stamina. Then Sunday and Monday came and POTS and EDS decided to hit me like a ton of bricks.  My joints felt so loose and I had to use my wheelchair again.  Sigh.

I keep saying I just don’t understand these disorders.  I have kept journal after journal trying to pinpoint patterns so I can try and predict good days and not so good days.  So far these are a few of the patterns I have been able to find…