Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘POTS’

Five For Friday 1/10/20

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Still fighting insurance. Still paying out of pocket for PT. My doctor wrote me an amazing letter advocating for me. We will see, but rest assured, I am not backing down for anything.
  • I had an infusion. Two bags of fluid. I finally remembered to bring my blanket and it made those three hours so. much. better.
  • One session of PT. Body was a mess after three weeks away. Thank God for manual medicine.
  • I began Morning Meltdown. I committed to 100 workouts. I look pretty ridiculous because I do it in my sports bra, underwear, tennis shoes, neck, and back brace in my basement. I figure sweat is sweat, right?! There’s no wrong way to get it done.

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 12/6/19 & 12/13/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two days of PT: Cardio. Strengthening. Manipulative medicine which has consisted of getting my stomach working, calming down my thoracic, and putting my first ribs back in place.
  • Five Days of Home Rehab. Lots more running. Lots more sweating. I love it.
  • One Infusion. They gave me a huge fluffy blanket and it was glorious. GLORIOUS.

Five For Friday 8/30/19, 9/6/19, 9/13/19, 9/20/19

Written by Katie. Posted in Five For Friday, Uncategorized

FOUR WEEKS. FOUR. That is a record! I’d like to say I’ve been slacking, but living in the moment, working hard to be the best Mama, wife, friend, and self I can be, and passing out by 8:30 is more accurate.

1. Medical Stuff:

  • PT. My hip is doing so much better. I think it’s a combo of things; eating clean, exercising, the right manipulative medicine, prolo, and holding Lucia differently. I’m feeling relieved to think that I finally turned a corner.
  • Home Rehab. I’m running again. Not all running but run-walk intervals and it feels pretty darn good. Also, strengthening and more strengthening.
  • A couple of shrink appointments.
  • Dentist appointment. 37 and still no cavities!

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."