Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Questions’

Five For Friday 9/14/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I had my 22 week ultrasound on Wednesday! Cervix was good. Baby looked good. He/she was sleeping with its arm above its head (again)…just like how Brad sleeps…
  • 1 Day of PT. 3.5 miles cardio. My ribs keep slipping so we worked a lot on getting them, and hopefully keeping them in!
  • Two days of home rehab.

Five For Friday 1/5/18

Written by Katie. Posted in Five For Friday

Happy New Year, friends and family!

1. Medical Stuff:

  • Still on my PT hiatus for three more days!
  • I had prolotherapy today! The last time I went was February. This blows my mind because when I first started going in 2011, I had to have treatments every six weeks. That’s some major progress. Today, we did my neck, jaw, thoracic, and SI Joints. Definitely worth the trip to Indiana.
  • Three Days of Home Rehab. Tuesday marked my first workout of 2018 and it wasn’t pretty but I made it. I tried being a “normal” person the last two weeks, by eating my way through Christmas and New Year, not working out, and lazing around with family and friends.  Well, that was dumb. LIKE REALLY DUMB.

    Defective collagen is no joke, and I am not stronger than it. I tried to show it who was boss, but my body showed me who was boss right back. My family kept telling me to wear my neck brace yesterday, and I kept stubbornly refusing while holding my head up with my hand.

    I remember the day I was diagnosed with EDS by my specialist, who also has EDS himself, and he told me that I’ll find out pretty quickly how many days I can go without being active before I feel like my body is coming unglued. For him, it was three days.

    Well, he was right. For me, it is FOUR. After four, I started feeling weaker, and having more symptoms. By last night (14 days later), I was in tears, and was really, REALLY mad at myself.

    Today, I decided that the anger was no longer productive, and I begrudgingly strapped on that neck brace and put in an hour of cardio and strengthening…And guess what? I immediately started functioning better after my workout.

    So once again, my body showed me I am not a “normal” person. I work out to stand up, function, and ultimately live. And the more I work with my body like it’s my best friend, rather than try to show it up, I will be better off. So no, I’m not normal. I’m a defective zebra…But a badass zebra at that.

    2. My brother had an imaginary friend as a kid named Herkey Morocco. Now his best friend is a reality. Ladies and gents, meet Senor Herkey Morocco Dama, my new beautiful nephew. That makes two dog nephews and seven human nieces. I’m a lucky aunt. #adoptdontshop

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3. This week was a lot less about being lazy, and a lot more about being productive. Renewing teacher certs, replacing my car battery, getting back on the treadmill and bike, scheduling appointments, cleaning out my drawers and closet, taking a trip to Goodwill, working in my classroom for four hours…It feels good to have gotten some of those “nagging” jobs done that I have been putting off for a while.
Funny story while Brad was finishing some laundry this week:
Brad: Where does your unicorn onesie go?
Me: In the bin labeled onsies.
Brad: WTF. We have a onesie bin in our basement?!?!
Me: Doesn’t everyone?
Brad was NOT amused. I laughed so hard.
4. We rang in the New Year in Grand Ledge with dear friends. We have been following this same tradition for as long as I have been with Brad. This year was all about Cards Against Humanity and therefore, hilarity. Lots and lots of ridiculousness and hilarity.
5. If you had to choose one word for 2018, what would you choose?
Last year, my word was SHINE. This year, I was between faith and action, but after much reflection, I decided on FAITH for 2018.
I am excited to see what this year brings.

Five For Friday 1/13/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I did so much better this week. 2 Days of Home rehab and 1 day of PT. Three HARD workouts. I’m trying to get my muscles back on track, and they were definitely feeling it this week ; )
  • 1 Shrink appointment.
  • I went back to the ENT about looking at my deviated septum. I got there and they STILL did not have my CT scan from my other doc, so it was pretty much a waste of time. I called and my other doc said he will be sending it for a third time. I’m not exactly sure where the miscommunication is coming from, but I’m really, really hoping the third time is the charm.
  • Had a better sleep week. Praying it continues.

Five For Friday 12/11/15

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Neck flare, but electrical stim and heat took the edge off.
  • 1 Day of Home Rehab. Treadmill & strengthening exercises.
  • I saw Larry on Tuesday. I had stomach acupuncture while he did gentle manipulations on my first rib up to my C1. He put in the leave in acupuncture needles in my belly. Last time, they lasted exactly one week. We will see this time…
  • I saw Dr. Rosen after my Larry appointment. It seriously is the best combination of doctor appointments…I work on my body, and then go work on my mind. Ahhhhh. I am so grateful for both of them in my life. Cannot say it enough.

Right Now…

Written by Katie. Posted in About Me, Questions, Random

1) Reading: Emails! Other blogs, just started the book, Lean In.

2) Top three songs: Hmm, So many right now: “Just Like Heaven” (On a Cure Kick…Allie told me this made me old), “Blurred Lines” (Can’t help it. Makes my booty shake…does saying “booty” also make me old?), & “These are the Days” since I broke down and cried when I heard it driving home from school this week. It was such a fitting song to end the year.

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