Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Quotes’

Five For Friday 4/27/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Session of Acupuncture. I love my doc. Still convinced she is some kind of magical wizard. And I was a skeptic…especially because I did it before in 2010 and HATED it.
  • My first home infusion was a success. I had a nurse friend come over and start my IV. Talk about creativity. The bag of meds was connected to a wire hanger, which we hung from our kitchen ceiling fan. Worked like a charm.
  • 3 Days of Home Rehab. I kicked my a$$ all three times this week. Felt good.

Five For Friday 4/13/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 2 Days of Home Rehab. We have a working treadmill! I hear about so many peeps who hate treadmills, but I love that thing with my whole EDS heart.
  • 1 Day of PT. My left first rib is so messed up, I could barely exercise. Gah. My PT tried his best to work it back into place, and we did stim and heat, but I am wearing my collar as we speak, to try to get it to continue to calm down. My ribs and me. A constant battle. That shall be my book title one day.
  • I had my first acupuncture appointment with Dr. Tan. I fell asleep! I think that is a good sign…I’m going back Thursday, and am going to try weekly for a while.

Five For Friday 4/6/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Spring break catch up on doctor’s.
  • Thursday we went to Toledo to see Dr. Grubb for my yearly appointment. I am doing well, and only have to take my Propranalol and Midodrine as needed now. Thank you, body. I will take it. I will continue my saline infusions regularly, and take my meds on bad days. I’ve come a long way since when I started in 2010…in a wheelchair. Grateful.
  • I got my stitches out from my cyst removal.
  • Got some lab work done I was putting off.
  • Refilled tons of meds.
  • Scheduled weekly acupuncture for the next month. I’m excited!
  • 2 Days of Home Rehab. Cardio outside in the SNOW, strengthening exercises inside in the WARMTH.

Five For Friday 3/30/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • One day of PT. Light walking and bike. Circuit training and OMM.
  • 3 Days of walking the neighborhood with my sisters’s dog, Gru. Floor strengthening and light weights exercises after each walk. A good change up from my usual home rehab.
  • I had a cyst (I’ve had for about five months) removed from the top of my head on Thursday. Always something…Two stitches, some soreness, but my head is flat again ; ) I sure know how to kick off spring break off right! Stitches out on Monday!
  • Insomnia and weird dreams galore. Sigh.

Five For Friday 3/2/18

Written by Katie. Posted in Five For Friday

Whew! I am late…But you know what they say…better late than never ; )

1. Medical Stuff:

  • I haven’t been this “normal person” sick in a long time. NO voice, cough, hard to breathe, back on breathing treatments. It kicked my butt last week! But I am glad to say I am almost back to just my weird issues now! I will say teaching Kindergarten with zero voice is interesting…to say the least.
  • One day of PT. They went easier on me since I sounded like I was a smoker for 50 years. Probably a good thing.
  • One Day of home rehab. I am SO ready to get our new treadmill delivered (after our old one croaked). I miss it!
  • One shrink appointment = 768757575784785 breaths of fresh air. We talked about healing. A Lot.
  • I saw my primary care doc and found out I need to get a benign cyst removed from the top of my head on the first day of my spring break. Fun times.