Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Rare Disease Day’

Five For Friday 3/1/19

Written by Katie. Posted in Five For Friday

March! Made it to March! Woot! Woot!

1. Medical Stuff:

  • Tuesday PT. First couple of ribs sucked. My PT did her best to work her magic. I’m still struggling with my lower back. It’s loose, yet locks up. That’s EDS for ya. Need prolotherapy stat.
  • Had to reschedule my 6 week Postpartum visit for Monday. It’s coming fast!
  • Snuck a few sets of strengthening in when Lucia slept this week. Definitely not enough, but it’s better than last week. Working on it. See below…

Five For Friday 3/9/18

Written by Katie. Posted in Five For Friday

March Madness continues! And I am not talking about basketball. We just have so much going on this month.

1. Medical Stuff:

  • I had to take Monday off for a specialist appointment.
  • This upcoming week, the treadmill should FINALLY be arriving. I miss it. Didn’t think I would this much.
  • 2 Home Rehab sessions: One, outside hitting the pavement and one Beachbody workout that left my legs feeling like straight up  JELLO.
  • Had to take PT off this week because of Kindergarten Round Up.
  • I had my two year eye checkup on Thursday. Picked out some new glasses, and had to have the whole gamut of testing. Why, you ask? Oh, EDS, you can effect everything. I had one test that pointed to Glaucoma (which can be because of EDS). I had a more advanced test, that turned out okay, but we will be watching it closely from here on out. Never dull ; )

Five For Friday 3/2/18

Written by Katie. Posted in Five For Friday

Whew! I am late…But you know what they say…better late than never ; )

1. Medical Stuff:

  • I haven’t been this “normal person” sick in a long time. NO voice, cough, hard to breathe, back on breathing treatments. It kicked my butt last week! But I am glad to say I am almost back to just my weird issues now! I will say teaching Kindergarten with zero voice is interesting…to say the least.
  • One day of PT. They went easier on me since I sounded like I was a smoker for 50 years. Probably a good thing.
  • One Day of home rehab. I am SO ready to get our new treadmill delivered (after our old one croaked). I miss it!
  • One shrink appointment = 768757575784785 breaths of fresh air. We talked about healing. A Lot.
  • I saw my primary care doc and found out I need to get a benign cyst removed from the top of my head on the first day of my spring break. Fun times.

Five For Friday 2/28/14

Written by Katie. Posted in Uncategorized

End of February, already? How in the world did that happen?!

1. Medical Stuff:

  • 1 Day of PT. Tons of scapula fire exercises to help strengthen my upper back and neck.
  • 2 Days of Home Rehab. High treadmill inclines, floor exercises, balance work, and light stretching.
  • Zero doctors.

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