Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Relationships’

EDS Inservice

Written by Katie. Posted in Ehlers-Danlos Awareness

 

Last Tuesday, was the Ehlers Danlos Inservice that the PT student who I have been working closely with put together for all of the other therapists.  She had asked me to come to show the Beighton Scale (one of the ways I was diagnosed), and to help answer questions and provide information from a patient’s perspective.  ?I was so proud of her~She put so much work into the presentation.  It is always surprising to me how little is known about EDS in the medical world.  This is why I was extremely THANKFUL to this student who took the time to educate the therapists, to help “make the invisible, visible,” and hopefully help other patients get to a proper diagnosis in a much more timely fashion than it took me. 
The slides below are from her PowerPoint.  Let me be clear~this is NOT my presentation.  I did not put together these slides.  The PT student did, and she was nice enough to share these and all of her other resources with me. 

Five For Friday 2/18/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:

  • 3 sessions of PT-2 strengthening and 1 soft tissue
  • 2 days of home rehab
  • Used my topical pain cream for the first time.  It did help take some of my back and neck pain away.  I love that it’s not another pill I have to take.
  • Had the Rest and Recovery Talk.
  • Had an hour session with Dr. Rosen.  He definitely helps me get my head on straight.

Thursday Bragging

Written by Katie. Posted in Physical Therapy

I’m sitting…ok lying here after PT trying to get my body to move but not having much luck.  I guess that is to be expected with my first PT session after prolo.  I did surprisingly well during therapy but I am definitely feeling it now.

On the Dysautonomia POTS FB page this morning, this status caught my eye:
“It is important that you recognize your progress and take pride in your accomplishments. Share your achievements with others. Brag a little. The recognition and support of those around you is nurturing.”  ~Rosemarie Rossetti


This quote was very timely today. 

Five For Friday 2/4/11

Written by Katie. Posted in Five For Friday

1.  Medical Stuff:
I had two sessions of PT.  
Bought special gloves to use to help put on my compression stockings.
A lot of exercises were done at home.
I rescheduled and rescheduled again prolotherapy for Monday.
I had blood work to test my potassium since Florinef can deplete potassium.  My potassium was normal but my glucose was low.