Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Research’

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 12/6/19 & 12/13/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two days of PT: Cardio. Strengthening. Manipulative medicine which has consisted of getting my stomach working, calming down my thoracic, and putting my first ribs back in place.
  • Five Days of Home Rehab. Lots more running. Lots more sweating. I love it.
  • One Infusion. They gave me a huge fluffy blanket and it was glorious. GLORIOUS.

Five For Friday 3/8/19

Written by Katie. Posted in Five For Friday

1.Medical Stuff:

  • I had my 6 week postpartum appointment on Monday. Everything went well…I cleared for exercise. However, I left out the part that I’ve been exercising the last couple of weeks. Oops…did not know I had to wait for the green light.
  • PT on Tuesday. An hour of exercise, a half hour of manual medicine, and 15 minutes of heat and electrical stim. I’ve missed the stim.
  • One two mile walk with a pitbull. IN SUNSHINE.
  • One Day of Home Rehab…better…still need to add 1-2 more days.

Five For Friday 2/16/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’ve been on the Ketogenic diet for two weeks now. Days, 7, 8, 9 were awful, but it has gotten better. I learned the trick of drinking broth before bed, and it has made life much better. That tells me electrolytes/salt were low and I must keep them up or I will feel like CRAP.
  • One OMM appointment. We focused a lot on putting my upper ribs back in place. Damn ribs, work with us.
  • One Day of Home Rehab. FAIL.
  • Back to PT next week.

EDS Tweets

Twitter response: "Invalid or expired token."

POTS Tweets

Twitter response: "Invalid or expired token."