Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Research’

Five For Friday 3/13/15

Written by Katie. Posted in Five For Friday

I stayed home from school yesterday…to rest. My body has been telling me in more ways than one that it needed some recovery time…and I listened. Maybe I am getting a bit wiser in my older age : )

1. Medical Stuff:

  • I saw my Pulmonologist on Monday. I love when I hear the word “normal” from a doctor. My breathing tests were all NORMAL.
  • I saw Larry on Tuesday for more OMM; ribs, cranial, and TMJ.
  • 2 Days of Home Rehab.
  • I got my glasses back for the third time. It’s true! The third time IS the charm! They do not make me sick. Yesssss.
  • Going on my third straight week of my left eye twitching. I’m trying not to worry. But I’m Katie…I’ve named it Henry. I hope Henry goes away really, really soon.

Five For Friday 2/13/15

Written by Katie. Posted in Five For Friday

I have a lot of pics from this week. I am sad I can’t post! : ( Hopefully soon…!

1. Medical Stuff:

  • I saw Larry on Monday for cranial work and gentle manipulation on my ribs, neck, and jaw.
  • 3 Days of Home Rehab. Strengthening, cardio, and more strengthening…
  • I picked up my new reading glasses last Friday. I gave it a week to get used to them, but every time I have tried to wear them, they make me feel really sick. So hi, ho, back to the eye doc I go.

The 2nd Annual Invisible Illness Benefit Concert Launch Day!

Written by Katie. Posted in Ehlers-Danlos Awareness, Family, Fundraisers, Invisible Illness, Memorable Experiences, Music, POTS Awareness, Thankful

Dear friends, family, supporters, and fellow zebras,

Finally.

After months, and days, and hours, and hours…and more hours of planning, we are finally ready to launch ticket sales for our 2nd Annual, “An Evening with Chris Trapper to Benefit Invisible Illness Research.”