Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Struggles’

Five For Friday 7/3/20

Written by Katie. Posted in Five For Friday

July! It’s been over a month. I guess it’s time for another update, quarantine style.

1. Medical Stuff:

  • I am doing okay rehabbing at home. There are many days I would love to go in for OMM but I’m managing okay enough. I pray everyday that that will continue.
  • On a different note, I fell up the stairs last week and haven’t been able to put full weight on my foot since. Dance, walking, and running have been my lifelines during this pandemic so the last week has been HARD.

Five For Friday 1/10/20

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Still fighting insurance. Still paying out of pocket for PT. My doctor wrote me an amazing letter advocating for me. We will see, but rest assured, I am not backing down for anything.
  • I had an infusion. Two bags of fluid. I finally remembered to bring my blanket and it made those three hours so. much. better.
  • One session of PT. Body was a mess after three weeks away. Thank God for manual medicine.
  • I began Morning Meltdown. I committed to 100 workouts. I look pretty ridiculous because I do it in my sports bra, underwear, tennis shoes, neck, and back brace in my basement. I figure sweat is sweat, right?! There’s no wrong way to get it done.

Five For Friday 12/20/19, 12/27/19, & 1/3/20

Written by Katie. Posted in Five For Friday

The holidays put me wayyy behind!

1. Medical Stuff:

  • I had three weeks off of PT. THEN, I received a letter that my PT will no longer be covered because some doctor who I have never met read a few notes from my file and determined I can do a home program. Gah. GAH. GAHHHHHH. I am currently fighting this and have my medical team fighting along with me. I will update when I can on the outcome. Sidenote: There are not many things that get me this worked up than insurance issues. The system is so messed up.
  • One shrink appointment. Getting my head on straight heading into 2020. Med management too.
  • I did not do too well with home rehabbing over the holidays. I got in 3, maybe 4 sessions in the last few weeks.  Oof. Back on the wagon now.
  • I’m probably forgetting something since it’s been three weeks but I’m too tired to get up and look. Anyone else just want a nap?

Five For Friday 8/23/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two sessions of PT. Started a few new strengthening exercises for my glutes and hip. We are realizing that if we release (through OMT) my hip flexor area, glute, and tightness down my leg, my hip feels better.
  • Two days of Home Rehab. Interval run/walks. Three rounds of 10 different strengthening exercises. I will find my abs again. I will.
  • Week 3 of the Postpartum challenge. Down 7 pounds.
  • Why I go to Dr. Rosen regularly:

EDS Tweets

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POTS Tweets

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