Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Surprises’

Five For Friday 2/2/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT with a substitute therapist. He was awesome and brought a different perspective to my management. We worked a lot on proper breathing techniques.
  • 2 Days of Home Rehab. Treadmill. Bike. Scaps. Legs. Biceps.
  • I am sleeping like crap. I hate these sleep strikes, but if I have learned anything, I know they do not last forever.

Five For Friday 7/7/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Recovery, recovery, recovery. NO PT, no home rehab. (I wasn’t allowed to because of the septoplasty, so just good ol’ RECOVERY.
  • Monday, I had to get my nose splints out at the hospital. Holy crapballs, those things must have been up my brain hole they were so ginormous. Good thing it went so fast…or I may have slapped my extremely nice doctor. I have so much less pressure now, which is awesome. Feels like I lost a few pounds!

Five For Friday 1/13/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I did so much better this week. 2 Days of Home rehab and 1 day of PT. Three HARD workouts. I’m trying to get my muscles back on track, and they were definitely feeling it this week ; )
  • 1 Shrink appointment.
  • I went back to the ENT about looking at my deviated septum. I got there and they STILL did not have my CT scan from my other doc, so it was pretty much a waste of time. I called and my other doc said he will be sending it for a third time. I’m not exactly sure where the miscommunication is coming from, but I’m really, really hoping the third time is the charm.
  • Had a better sleep week. Praying it continues.

Five For Friday 5/20/16

Written by Katie. Posted in Five For Friday

WHAT. A. WEEK!

1. Medical Stuff:

  • I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
  • 2 Days of Home Rehab.
  • I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
  • I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

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