Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘U of Toledo’

Five For Friday 12/6/19 & 12/13/19

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Two days of PT: Cardio. Strengthening. Manipulative medicine which has consisted of getting my stomach working, calming down my thoracic, and putting my first ribs back in place.
  • Five Days of Home Rehab. Lots more running. Lots more sweating. I love it.
  • One Infusion. They gave me a huge fluffy blanket and it was glorious. GLORIOUS.

Five For Friday 7/3/15

Written by Katie. Posted in Five For Friday

Summer, please slow down! July?! How is that possible!

1. Medical Stuff:

  • 3 Days of Home Rehab.
  • My ribs still hate me. I need to get back in for more OMM.
  • When my ribs flare, my gastroparesis flares. Happens every time. If there is ever a research project done on us, sign me up.

Five For Friday 2/13/15

Written by Katie. Posted in Five For Friday

I have a lot of pics from this week. I am sad I can’t post! : ( Hopefully soon…!

1. Medical Stuff:

  • I saw Larry on Monday for cranial work and gentle manipulation on my ribs, neck, and jaw.
  • 3 Days of Home Rehab. Strengthening, cardio, and more strengthening…
  • I picked up my new reading glasses last Friday. I gave it a week to get used to them, but every time I have tried to wear them, they make me feel really sick. So hi, ho, back to the eye doc I go.

Five For Friday 2/1/14

Written by Katie. Posted in Five For Friday

February! Whoa!

1. Medical Stuff:

  • This was one of those weeks I felt like I lived at the doctor.
  • 1 Day of PT. Planks, planks, and more planks.
  • 2 Days of Home Rehab. I upped my treadmill incline this week.
  • I saw my psychiatrist on Tuesday. In 15 years, I can honestly say I have always left his office able to breathe so much better. Tuesday was no different. I told him he is never, ever allowed to retire. We changed my meds a bit, and I will be seeing him bi-weekly for the time being. I am always reminded after those appointments that working on my mental health is just as important as working on my physical health.

\”Stable:\” POTS in Toledo

Written by Katie. Posted in POTS Appointments, POTS Awareness

There’s always an air of excitement when it is time for me to return to Toledo to either see Bev or Dr. Grubb.  I think it’s because it took so long for me to get into them, knowing that they are two of the best Dysautonomia experts in the world.  Call it hope, call it an understanding, call it an appreciation for doctors who care and “get it”…call it what you will, but it never seems like a chore to travel to Toledo to see these two incredible doctors and people. 

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