Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘UTMC’

Five For Friday 4/22/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT.
  • 2 Days of Home Rehab.
  • I had an infusion on Wednesday. I am starting to notice when I need to go. I begin to feel more POTS symptoms, and more fatigue. I am so grateful I am able to get fluids with ease. It really does feel like it helps reset my system.

Five For Friday 2/12/16

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I’m not gonna sugar coat. This has been a rough week with neck, face, upper back, and jaw pain. I missed two days of school and went on an unplanned trip to Indiana to get prolotherapy injections. I have been on my heating pad more than I have not. I have puked from the pain. I have backed off from rehab to try and get things to calm down. I am working on not freaking out.
  • 1 Day of Home Rehab. No PT.
  • Prolotherapy on Monday. I messaged my doc on Sunday about my pain and was in his office Monday morning. After 60ish injections, I was on my way back to Michigan. I’m extremely grateful for docs who will make time for patients, and will do what they can to try and get to the bottom of the pain.
  • I saw Larry on Tuesday for OMM. I showed him the specific spot on my neck that has been giving me a lot of pain, including shooting pain into my left eye and lots of headaches. He is thinking it is occipital neuralgia, which is giving me ocular migraines. I did get some relief from him using gentle manipulation in that area. Ahhhh. Fun times…: )
  • I saw my shrink on Thursday. It was a much needed appointment, and I walked out of the office with a much better perspective. And a much better ability to breathe in and out.

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