I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS.  She had questions about my exercise routine with POTS and EDS.  It made me think about how I have really neglected this blog the last few months.  I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better.  I feel it’s important; especially for awareness and documentation sake.  When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS.  When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine. 

Today’s prompt: “How do you decide what to share and what not to share.”

This is pretty easy.  When I think disclosure, I always think to myself, what is my ultimate goal for blogging?  When I was at my sickest and feeling extremely lost, I scoured the Internet for anything and everything that could help me. 

August 23 was the day it was born.

It was a proud moment after a lot of hard work, designing and collaborating.

I slept for 10 hours last night.  That is huge.  Gigantic.  A relief.

I know I have kept quiet for a while.  I would rather write about how well I am doing than how much I am struggling.  But sleep gives me perspective,

I am sitting here at a website work meeting with my amazingly talented web designer, Sebastian, and I am realizing I have been quite the blog slacker the past couple of months. I have been telling myself, it was all because of the event, but I came to the realization today that I have just been using that as a crutch. A flat out excuse.

I mean, I really have not had