I recently received an email from a Mom whose daughter has just been diagnosed with EDS and POTS. She had questions about my exercise routine with POTS and EDS. It made me think about how I have really neglected this blog the last few months. I am honestly having trouble finding the time and the energy to keep everything updated, but I am going to try and do better. I feel it’s important; especially for awareness and documentation sake. When I think back to why I started this blog in the first place, one of the reasons was to document my journey for learning to live with EDS and POTS. When I was really sick, I remember looking all over the Internet for blogs that did the same. I found such comfort in reading about other people’s stories that were so similar to mine.
Posts Tagged ‘Writing’
Today’s prompt: “How do you decide what to share and what not to share.”
This is pretty easy. When I think disclosure, I always think to myself, what is my ultimate goal for blogging? When I was at my sickest and feeling extremely lost, I scoured the Internet for anything and everything that could help me.
August 23 was the day it was born.
It was a proud moment after a lot of hard work, designing and collaborating.
I slept for 10 hours last night. That is huge. Gigantic. A relief.
I know I have kept quiet for a while. I would rather write about how well I am doing than how much I am struggling. But sleep gives me perspective,
I am sitting here at a website work meeting with my amazingly talented web designer, Sebastian, and I am realizing I have been quite the blog slacker the past couple of months. I have been telling myself, it was all because of the event, but I came to the realization today that I have just been using that as a crutch. A flat out excuse.
I mean, I really have not had