WHAT. A. WEEK!

1. Medical Stuff:

• I was supposed to have PT but ended up having to cancel and go to urgent care instead because of ear pain, and the fact that it totally freaked me out that I woke up and could not hear out of my left ear. After three rounds with a peroxide ear gun, my ear was back to normal and I could hear again. Sighhhhhh…: )
• 2 Days of Home Rehab.
• I was in Indiana on Wednesday at the TMJ & Sleep Therapy Centre to pick up my new mouth orthotic that is meant to help stabilize my jaw and hopefully relieve my jaw, neck, and head pain I get from TMJ (and EDS). Well, it has not gone as planned. I tried sleeping with it two nights in a row, and it is just way too tight and painful. So, back to Indiana I go for adjustments when I can figure out a day I can get away again!
• I had my fifth infusion on Monday. Still very grateful to be able to have this treatment for POTS!

1. Medical Stuff:

• 1 Day of PT.
• 2 Days of Home Rehab.
• I saw my shrink on Tuesday. Mental health…just as important as physical health!
• I saw one of my OMM docs on Thursday. My left side was way out of whack. Thankful for gentle manipulative medicine to get me back in place.
• I’ve been struggling with a Gastroparesis flare this week. Hoping it will pass much sooner than later.

1. Medical Stuff:

• 1 Day of PT. New scap exercises!
• 2 Days of Home Rehab. Treadmill, and lots of legs!
• No doctors. I cannot remember the last time I got a nap in every single afternoon. It was needed and ahhh.maz.ing.

1. Medical Stuff: It was just one of those weeks when I felt like a lived at the doctor.

• 1 Day of Home Rehab. Treadmill! Side walking and backwards walking too…
• I saw Larry on Tuesday. He just makes going to the doctor a blast. We laughed so hard as he worked on my neck, head, and jaw. He’s good for the body AND mind. Those kind of doctors are gems.
• I had my second infusion on Wednesday. I am learning. Get it in my non-dominant hand, and I can still work on the computer. I did feel much better after both bags of saline.
• Brad and I traveled to Indiana Thursday night for a Friday morning appointment with a new doc; Dr. Klauer who specializes in TMJ and sleep disorders. Wellll, after four hours, a VERY extensive exam, and going over all of the results, we came up with a plan: 1) I need a sleep study to see if EDS is affecting my breathing when I sleep. 2) I have a severe deviated septum and bone spur and need surgery. (Sigh). 3) I am having a new splint made for my jaw pain that will take all of the pressure off the back of my teeth and mouth to allow my jaw muscles and ligaments to relax at night. Let me just say that they did an amazing job, and I really liked Dr. Klauer, but as many of you know, having chronic illnesses is NOT cheap.

Vacation week is over…: ( Trying not to be too sad…we made some pretty incredible memories.

1. Medical Stuff:

• Not much going on, on the medical front this week. No docs, no PT, and I pretty much failed on home rehab while I was away. Sigh. Back at it TODAY. NO excuses.
• Still waiting for my Domperidone. It is coming from England, to Canada, and then to me. Hopefully any day now…