Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for November, 2010

11/19/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for the other side of my family; all of the Jaskolski’s. I am thankful for my mother and father-in-law, Tom and Lee, my other sisters, Jill, Audrey,and Steph, and my other brothers, Chris, Daric, and Jay.  I am thankful for everything they do for us.

11/18/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for my diagnoses.  After many, many months I finally have my answers: POTS and Ehlers Danlos Syndrome.  I am thankful that the phase of figuring out what is wrong with me is finally over.  I am thankful that it only took me 11 months to get a POTS and EDS diagnosis since it often takes others years to be diagnosed with POTS and EDS because there is not much known about these disorders. 

Finally

Written by Katie. Posted in POTS Appointments

After 11 long months, I have my first answer.  I went to Cleveland yesterday to get the results from my autonomic nervous system testing.  I went into the appointment with low expectations, most of all to protect myself.  I had been through so many other appointments to only find myself frustrated and disappointed when I was told that the test results did not show anything.  The doctors would tell me to celebrate the negative results but honestly this was hard when I still knew something was really wrong, and I didn’t know what it was.  I would leave many specialist’s office feeling like a crazy person when I was told my tests were normal, or that they came back “beautiful,” while I was still having crazy symptoms that made me sick.

11/17/10 Thankful

Written by Katie. Posted in Thankful

Today I am thankful for the nurses and doctors I have seen in the last year who have gone above and beyond to help me.  I am thankful for honest doctors who are straight with me.  I am thankful for doctors who let me know in their own way that they will do what is in their power to help me.  I am thankful for doctors who are not afraid to admit that my symptoms are beyond their expertise so they help find me someone who can fit my needs.