Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for March, 2011

EDS Inservice

Written by Katie. Posted in Ehlers-Danlos Awareness

 

Last Tuesday, was the Ehlers Danlos Inservice that the PT student who I have been working closely with put together for all of the other therapists.  She had asked me to come to show the Beighton Scale (one of the ways I was diagnosed), and to help answer questions and provide information from a patient’s perspective.  ?I was so proud of her~She put so much work into the presentation.  It is always surprising to me how little is known about EDS in the medical world.  This is why I was extremely THANKFUL to this student who took the time to educate the therapists, to help “make the invisible, visible,” and hopefully help other patients get to a proper diagnosis in a much more timely fashion than it took me. 
The slides below are from her PowerPoint.  Let me be clear~this is NOT my presentation.  I did not put together these slides.  The PT student did, and she was nice enough to share these and all of her other resources with me. 

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Andy\’s Weekend

Written by Katie. Posted in Family

Andy leaves March 16th for basic training for 9 weeks and then Officer Candidate School for 12 weeks in Fort Benning, Georgia.  I am so, so proud of Andy?, and all of his hard work, dedication, and commitment to join the Army.  Since he was 18 he talked about joining the military, but decided he would pursue a degree in kineseology first at MSU.  After graduating, becoming an Officer Candidate became even more of a passion of his and he aggressively and successfully pursued this career path. 

I will miss him so much.  Out of my three siblings he has been the one who has stayed close.  I made him promise he would write me, and he made me promise I would not send him “those talking cards” because he doesn’t want to get beat up. 🙂

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"There are no gains without pains." ~Stevenson

Written by Katie. Posted in Prolotherapy

Hopefully, this post will be coherent since I am pretty sleep deprived.  I had my second treatment of prolotherapy yesterday, and let’s just say this time, it really kicked my booty.  I went into it thinking the second round would be easier than the first since I knew what to expect and I have been experiencing some benefits from the first round.  Well, I was wrong, wrong, wrong.  I was NOT expecting that this second round would be way more painful than the first and make me sick (throwing up) from the pain.  It’s been a long 24 hours.

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