Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Archive for May, 2011

Deja Vu

Written by Katie. Posted in Ehlers-Danlos Awareness

I know this is long, but if you have a chance to watch it, please do.  It just might help someone.  As I watched, I could not get over all of the the similarities between her story and mine.  I laughed when she said “Why not me” because that is what I say too.  Awareness, awareness, awareness.  I can’t say it enough. 

Georgia in Pictures

Written by Katie. Posted in Family


Tuesday night, my Mom, Dad, and I flew to Georgia for my brother, Andy’s, Army Family Day ceremony, and graduation from Basic Training.  Brad took his students to Camp Ebersole from Tuesday to Friday, (which happened to be the exact amount of time we were gone as well) so he was not able to come.  I missed him!
?Instead of just typing about our trip, I will try my best to describe it through pictures. 
Wednesday morning we arrived to Fort Benning for Family Day.  Fort Benning was nothing like what I expected.  It was ginormous!
  As we were walking to the area where Family Day was being held, we passed these soldiers.  All I kept hearing from one of the Drill Sergeant’s was, “There is no smiling!”

Five For Friday 5/28/11

Written by Katie. Posted in Five For Friday

I know, I know, I am late…My excuse is I have been in Georgia, got home yesterday, and had enough energy left to watch the Modern Family finale, and pass out on the couch.  After a full night’s sleep, I am moving slow, but back in action.

1.  Medical Stuff:

  • 1 day of PT
  • 2 Days of Home Rehab
  • Monthly appointment with Larry.
  • Was given a prescription for waist high compression stockings.

Energy Smarts

Written by Katie. Posted in Ehlers-Danlos Awareness, My Creations, Other Appointments, POTS Awareness

I had my monthly Larry appointment today.  At my April appointment, Larry graded my Apollo 13 homework assignment he had given me after I spent my March appointment with him in serious meltdown mode tears about life in general.  After I received my A++, Larry gave me another assignment, which was due today.  My assignment was to show some kind of scale that represented things I COULD do on a 0%, 25%, 50%, 75%, and 100% energy day. 

This assignment was meant to help me reframe my thoughts.  So instead of getting upset and saying something like, “Oh my goodness, it’s a 25% energy day and I can’t dust the house,” I could instead look at it as, “It may be a 25% energy day but I CAN do a load of laundry, some floor exercises, and post on my blog.” 

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