Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Ehlers-Danlos’

Five For Friday 9/21/18

Written by Katie. Posted in Five For Friday

Catching up…better late, than never!

1. Medical Stuff:

  • I got the cyst on my head removed for the THIRD time. They had to cut deeper and I got 7 stitches. Holy headache, the next day. It was not fun, but I survived with Tylenol, ice, and a heating pad. I’ll spare you the pics since it’s super gross. My dermatologist says it should not come back so here’s hoping!
  • 1 Day of PT. Lots of cranial work because of so much head pain (see above).
  • 2 Days of Home Rehab. Trying to get all the cardio in I can get outside before it’s way too cold.

Five For Friday 8/17/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Now that the cat is out of the bag, I can actually talk about ultrasounds! Because I am high risk in four areas, I get to see the babe often…I guess that is a plus of being a GERIATRIC pregnant woman…;) Monday, I had an US and baby was not having it. It was in the same mood I wanted to feel…curled up in a ball, sleeping, with an arm over the head so it didn’t have to acknowledge the “paparazzi.” Everything looked and measured good! I am getting to the halfway point!
  • I had to go to my PCP to get my annual accommodation letter for my school district. Easy peasy.
  • I am being referred to a dermatologist because I have a cyst that won’t leave. My PCP has tried twice to remove it and it keeps returning, so now it is time for the big guns. Fun. Times.

Five For Friday 6/22/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Sucked at rehab this week. Packing up my classroom zapped me. Must do better!
  • 6 month dental cleaning. No cavities!
  • Acupuncture and infusion. The usual.
  • I established with a new rheumatologist on Wednesday. My PCP is leaving and I need someone to act as a “gatekeeper” for my EDS. Went really well!

Five For Friday 4/20/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT. Had a different PT. We tried out some gadgets for pain control like a posture strap, trigger point gadget for necks, and exercises using two taped tennis balls for trigger points and stability work.
  • 2 Days of Home Rehab. Loving the new treadmill along with my work on the recumbent bike too.
  • Second incredible acupuncture treatment. Second time falling asleep in the middle. Second time waking up to, “All done, Jennifer…Time to wake up, Jennifer!” As long as the treatments are amazing, I’ve decided I can be Jennifer. #maybejenniferwillbebilled #ivetried

Five For Friday 3/9/18

Written by Katie. Posted in Five For Friday

March Madness continues! And I am not talking about basketball. We just have so much going on this month.

1. Medical Stuff:

  • I had to take Monday off for a specialist appointment.
  • This upcoming week, the treadmill should FINALLY be arriving. I miss it. Didn’t think I would this much.
  • 2 Home Rehab sessions: One, outside hitting the pavement and one Beachbody workout that left my legs feeling like straight up  JELLO.
  • Had to take PT off this week because of Kindergarten Round Up.
  • I had my two year eye checkup on Thursday. Picked out some new glasses, and had to have the whole gamut of testing. Why, you ask? Oh, EDS, you can effect everything. I had one test that pointed to Glaucoma (which can be because of EDS). I had a more advanced test, that turned out okay, but we will be watching it closely from here on out. Never dull ; )