I spent the day at the University of Toledo to see the wonderful Dr. Bev for my 6 months POTS check-up.

We drove 2 hours.  Waited 2 hours.  Saw Bev for 25 minutes.  And drove home 2 hours.

Usually I see Bev or Dr. Grubb for over an hour,

If you have been following, you know I had my chance to cross off one of my goals for the year last week, which was to work out with the incredible Dr. Lavallee.   Back in January I had asked him at my yearly EDS check-up if he would ever be willing to work out with me.  He laughed a little, I think taken by surprise, and said, “But I don’t think you need to learn many of the exercises I do…I think you are doing well managing your EDS so far on your own. “

Prolotherapy day.  It was a quick trip this time around.  We got up at the crack of dawn.  Drove to Mishawaka.  Got gas.  Ate Subway.  And went to my appointment.

I was weighed.  My blood pressure

As I think about the post I just published, something is bothering me.  I feel like I need to back up a bit, because I feel like I made “exercising” with POTS and EDS sound like such a simple thing to do.  And if you have POTS and/or EDS, you know that it is definitely NOT easy.

I wish they had bumper stickers that said this.  Because it’s true.  Very, very true.

This is something I never thought I would say.  But that’s life.  It can change on you in an instant.