Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Fundraisers’

Five For Friday 7/3/20

Written by Katie. Posted in Five For Friday

July! It’s been over a month. I guess it’s time for another update, quarantine style.

1. Medical Stuff:

  • I am doing okay rehabbing at home. There are many days I would love to go in for OMM but I’m managing okay enough. I pray everyday that that will continue.
  • On a different note, I fell up the stairs last week and haven’t been able to put full weight on my foot since. Dance, walking, and running have been my lifelines during this pandemic so the last week has been HARD.

Five For Friday 10/19/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • PT on Thursday. So happy my OB said I can do electrical stim again. It helps calm down my first ribs that will not cooperate right now.
  • I saw my shrink on Tuesday. I made him prove that we met for an hour. It felt like 2 minutes.
  • Allie moved home last weekend and started her new job with long hours, so I’ve been walking Gru Gru each day. If only I had been doing this from the beginning of my pregnancy…it forces me to get my body moving.

Five For Friday 6/22/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • Sucked at rehab this week. Packing up my classroom zapped me. Must do better!
  • 6 month dental cleaning. No cavities!
  • Acupuncture and infusion. The usual.
  • I established with a new rheumatologist on Wednesday. My PCP is leaving and I need someone to act as a “gatekeeper” for my EDS. Went really well!

Five For Friday 4/27/18

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Session of Acupuncture. I love my doc. Still convinced she is some kind of magical wizard. And I was a skeptic…especially because I did it before in 2010 and HATED it.
  • My first home infusion was a success. I had a nurse friend come over and start my IV. Talk about creativity. The bag of meds was connected to a wire hanger, which we hung from our kitchen ceiling fan. Worked like a charm.
  • 3 Days of Home Rehab. I kicked my a$$ all three times this week. Felt good.

Five For Friday 12/15/17

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • 1 Day of PT with a very stuck thoracic! We got it moving thankfully. Still did cardio and exercises.
  • 1 Day of Home Rehab. Running and exercises. My foam roller was my bestie afterwards.
  • I had an infusion on Thursday. A big shout out to Chris who works at the hospital for always pretending I’m at the spa. He brings me drinks, food on fancy dishes, and warm pillows and blankets that he uses to “tuck in my piggies.” The people who work at the Sparrow Cancer Center are the best!