Just a "zebra" trying my best to live life to the fullest with EDS and POTS...and loving the ride.

Posts Tagged ‘Memories’

A Letter to one of the Best

Written by Katie. Posted in Ehlers-Danlos Appointments, Ehlers-Danlos Awareness, Inspiration, Thankful

Dear Dr. Lavallee,

I got your letter last week.  I think I smiled and cried at the same time when I read you were leaving your practice in South Bend and moving to a different practice in York, PA.  I immediately felt so happy for you but sad for us Michiana EDS’rs.  You have been there from the beginning, ever since I discovered I belong in this special club we like to call “zebras.” 

Five For Friday 8/16/13

Written by Katie. Posted in Five For Friday

1. Medical Stuff:

  • I saw my OMM doctor this week, which was extremely needed. When all was said and done, I had 6 ribs put back into place, my OA joint in my neck was released, and my sacrum was put back into place. I would be in rough shape without my frequent OMM visits.
  • Talk about being in rough shape without certain doctors. I would be pretty lost without my psychiatrist, Dr. Rosen. We are going on 15 years together, and he has gone through every trial and triumph with me through the years (The good, the bad, and the UGLY). I saw Dr. Rosen on Thursday which was timely said I had a major case of the “all my siblings are far away again” blues. I always explain leaving my visits with him as being able to breathe in and out with clarity. I firmly believe that your body can’t be healthy if your mind is not.
  • I am currently taking a month off of PT to see how I do on my own.
  • 2 Days of Home Rehab. That number should be higher.